Saturday, April 04, 2015

Retrieve Lament: Paul Van Allen (Father, into your hands I commit my spirit.)

"Once, ritual lament would have been chanted; women would have been paid to beat their breasts and howl for you all night, when all is silent.  
Where can we find such customs now? So many have long since disappeared or been disowned.  
That’s what you had to come for: to retrieve the lament that we omitted." 

             -- Ranier Maria Rilke, from Requiem For A Friend

Each year during Holy Week I ask friends to share a "mourning story" from their own life as a way to help us see Christ in the midst of suffering. Each story reflects on one phrase of Jesus' dying words. We have only just begun to know the Van Allen family.  I'm so glad that we entered each other's lives in time to wait for Henri together.  May his brave life remind us all that in the "wild uncontrollable adventure of being born", what have any of us to but to commit ourselves into the hands of often hard to see -- but never distant -- Father.



Waiting for Henri

I find Jesus very easy to follow in theory.  Its when he wants to go somewhere specific that I start having problems.

December 2nd, 5am: I’m inexplicably unable to sleep and find myself reading The Road to Daybreak by Henri Nouwen.  He talks of God’s call on him to leave the intellectually stimulating environment as a professor at Harvard Divinity School to go and live in a community of disabled people.  He describes himself as going “kicking and screaming.”  The coffee and the unusual silence of our house help the words slow down a little.
December 2nd, 4pm:  We receive a phone call from the birthing center saying that the genetic test results for our expectant baby boy just came in and we needed to “come in immediately” to talk about the results.  We knew immediately that this means Downs Syndrome.
We have two beautiful daughters Ava (7) and Layla (6).  Layla came into the world without any observable trauma and yet an MRI when she was three showed damage on both sides of her brain.  She is considered intellectually disabled and speech impaired.  Her disability meant the end of our life in China, our home for the previous 11 years.  The cost and the blessing of Layla frame the news we receive.
In the movie The Green Berets John Wayne is a seasoned Colonel leading missions in the Vietnam war.  In a scene boarding an airplane preparing for a parachute mission John Wayne comments “Colonel Kai you haven’t said a word all night.”  “You know why?” interjects a third officer.  “He’s never jumped before.”   “Oh, first one’s easy” John Wayne responds.   “Its the second one that’s hard to get ‘em to make.”
This is our second jump.  Our minds are a rush of resetting expectations.  The amount of diapers we will need to buy probably just tripled.  The decimal point on medical bills moves to the right.  I see a fork stuck in the hope that we will ever return to our globe trotting international life.
December 2nd, 8pm  we have tickets to Handel’s Messiah.  We keep our babysitting and our plans to go.  The tenor sings “Comfort ye my people…prepare ye the way of the Lord.”  This is getting a little too real.    I feel my soul kicking and screaming.   I sense that this is one of those points where my expectations that Jesus follow me are exposed and He puts the original offer back on the table.  “Follow me,” I hear Him say.
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March 31, 15 days before Henri's arrival
Waves of apprehension and anticipation are swelling each day closer to your arrival (scheduled for April 15th!).  As I take time in the early mornings to consider your coming I can’t help but wonder if I’m ready to welcome you with grace.  C.S. Lewis talked about the stresses in our lives that turn the lights on in our basements and expose the rats of sin…our grossest moments.  I’m looking forward to meeting you Henri but wondering if I’m ready to meet myself in the context of your needs and a deprivation of sleep.
I wonder too what you are getting yourself into.  In God’s mysterious and inexplicable ways he has taken mine and your mother’s broken DNA and woven in an extra copy of the 23rd chromosome into you.  The grief that that news brought us has been gradually replaced with expectation of blessing.  The stories that surround different boys, girls, men, and women with Down Syndrome that have come our way since your diagnosis have been consistently stories of childlike and irreplaceable joy.  Life has its costs and its benefits and the thing about believing in God is that we look with faith for surpassing blessing.  Life is not a zero sum game for those who love God.
Our life before kids and for a few years after your sisters came was marked by adventure and global travel.  That phase of life seems to have come to a screeching halt, and yet as I wait for you I sense an adventure coming much greater than the mountain roads of the Karakoram or island hopping in Indonesia.  G.K. Chesterton called out the shallow sentiment of the adventurer who elevated tiger hunting in India which was a chosen and somewhat controlled adventure to the wild uncontrollable adventure of being born:
“There we do walk suddenly into a splendid and startling trap. There we do see something of which we have not dreamed before. Our father and mother do lie in wait for us and leap out on us, like brigands from a bush. Our uncle is a surprise. Our aunt is, in the beautiful common expression, a bolt from the blue. When we step into the family, by the act of being born, we do step into a world which is incalculable, into a world which has its own strange laws, into a world which could do without us, into a world that we have not made. In other words, when we step into the family we step into a fairy-tale.”
Henri, I can’t wait for you to be born and to share life with you.  I hope you will learn to like baseball and Chinese food.  I’d warn you about your crazy sisters and the love they are getting ready to smother you with but you’ll figure it all out in time.  When we pass the peace in church my favorite part is reaching down to your mother’s tummy and saying “Peace of Christ” to you.   You are most welcome to our family be it fairy-tale or misadventure. There is a Storyteller at work who is hard to see but who does not stand at a distance.  
Peace of Christ to you, Henri.


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Paul Van Allen and his wife Lisa live in an uncool neighborhood in Austin, Texas where they are waiting for Henri along with Ava (7) and Layla (6). They moved home from Asia in 2012 after their younger daughter was diagnosed with Cerebral Palsy. Paul studied theology, speaks Mandarin, loves Texas skies, Austin cuisine, and his local Anglican church. he is tinkering with a new blog at www.hardbreakfast.com


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Jesus gave us a litany of last words as a Sufferer; we refer to them as the Seven Last Words of christ. The deathbed words of the Suffering Servant provide a framework for the stories of lament we share here this Holy Week.

I count it a high privilege to know -- at least in small part -- the mourning stories of the dear ones who will share here for seven days.  Their lives walk the path between celebration, yes, but also suffering -- illness, relational disillusionment, anxiety, joblessness, death of loved ones, death of dearly-held dreams.  Their stories have helped form me in my understanding of suffering and I believe they could also encourage you too.  


Friday, April 03, 2015

Retrieve Lament: Rachel Brown (My God, my God, why have you forsaken me?)

"Once, ritual lament would have been chanted; women would have been paid to beat their breasts and howl for you all night, when all is silent. Where can we find such customs now? So many have long since disappeared or been disowned.  
That’s what you had to come for: to retrieve the lament that we omitted." 

             -- Ranier Maria Rilke, from Requiem For A Friend

Each year, during Holy Week, I ask friends to share a "mourning story" from their own life as a way to see Christ in the midst of suffering. Each story reflects on one phrase of Jesus' dying words.  Today's story is a collection of words from my courageous friend Rachel, articulately describing the messy complexities of physical and psychological suffering.  Perhaps most courageously of all, she invites us -- her friends and family -- to pass the peace of a forsaken Christ as fresh healings over the recurring wounding of her body and soul. May we all know ourselves and each other in the same way.


1.
I have Bipolar Disorder.  This is not news.  I always think it’s news.  I always think it’s going to be so scandalous to announce.  I think that telling anyone I am sick will be disappointing, will discredit any ounce of wisdom and wellness I may ever have, undo any bit of the good I’ve done.  As if this is a disease tamed by diligence and strong moral character.  It does not matter how perfectly I eat, how long I sleep, how meticulously I curate my media consumption, sometimes, I just get sick.  Really sick.
Right now I am really sick.  
Sick enough to sit with psychiatrists for hours.  Sick enough to choose anti-psychotics and mood stabilizers.
Sick enough to say I can’t do my job without a tremendous amount of help.
Sick enough to say it out loud.
2.
Depression is an old friend. I have built my life around its coming and going.  I am rarely surprised by its arrival and I have systems in place for when it stays too long or pushes too hard.  Depression slows me down, gnaws at my hope for any good to happen in life ever again.  
Mania drops like an anvil from the sky.  It has no schedule, no rhythm.  It sings it’s siren song and dashes me upon it’s rocks.  It empties my bank account and fills up my notebooks.  It swerves the minivan and sets tarantulas on my writing desk.  It steals my sleep and my friends. 
Mania has crushed me more than once, but even so, I wave the red flag in front of the hypomanic bull, begging it to chase me so that I will finally write fearlessly, satisfy all the extroverted requirements of my world effortlessly, give generously, impress everyone, and clean out all the closets.
It feels easy to write about my back injury and all the ways it disappoints and inconveniences me.  It feels acceptable to be on the prayer list at church every Sunday since the fire shot down my leg, to let them read my name out loud and ask for my healing.  The scar on my back and the leg that drags give me permission to ask for help.  My MRIs and hospital bands and stacks and stacks of medical bills make the pain real and accessible to the world.  Physical pain is universal.  Everyone has a spine, has accidents that break bones, pull tendons, misalign ribs, crush intervertebral discs.  There is no shame in breaking your back.

3. 

When I was a little girl, I would get up in the middle of the night and rearrange my furniture.  I would  take out all the drawers, lay on my back on the floor, and push the dresser across the carpet with my legs.  Then the bed.  I would shove the mattress off and scoot one side, then the other, until I had the whole thing on the other side of the room.  It was deeply satisfying to have control over such big things, and to have a quiet way to exhaust my energy when the whole house was asleep.

Thursday, April 02, 2015

Retrieve Lament: Les & Renee Aylesworth ( I am thirsty.)

"Once, ritual lament would have been chanted; women would have been paid to beat their breasts and howl for you all night, when all is silent. Where can we find such customs now? So many have long since disappeared or been disowned.  
That’s what you had to come for: to retrieve the lament that we omitted." 
             -- Ranier Maria Rilke, from Requiem For A Friend


Each  year during Holy Week I ask friends to share a "mourning story" from their own life as a way to help us see Christ in the midst of suffering. Each story reflects on one phrase of Jesus' dying words.  The man who wrote today's reflection was a God-send to us when we were first figuring out how to be parents to teenagers - befriending our oldest son at a key time in his life.  We've grieved Renee's illness from a distance and have grown in our ability to understand what suffering-bourne love looks like -- in marriage, in family, in community.  Christ died fully human -- with every bodily need made evident in public.  The same Christ who told us to give the smallest gifts to the most vulnerable people, was Himself given cruelty when he asked for liquid relief.  May each time we give drink or food or comfort in His name, we relieve a little bit more the suffering, thirsty Christ.



A journal entry upon the one year anniversary of Renee's stroke:

I can't even begin to describe what this year has been like.  The ups and the downs, the highs the lows, the fear, the worry, the pain, the grief, the loneliness, the despair, the despondency, the frustration, the anger, the everything negative emotion you can imagine.  Yet somehow after hitting all these emotional and physical potholes along the way; some that threatened to completely engulf us - we have made it!

In our darkest days, there has been light.  Sometimes, oftentimes, just a sliver - but enough to keep going; to keep hoping.  The darkness can never overpower the light; and we have lived that this year.  In those early days when we weren't even sure if Renee would move again, let alone walk or talk; all we had was hope.  A hope that didn't generate from within us, that was manufactured or conceived by some superior ability of our own; but from somewhere, from Someone else.  From Jesus, who then placed it in us.  In our profound weakness and groanings, He instilled hope within us.  There have been days, many days, when hope faded, that it seemed like futility; but because of Him, somehow it came back - and has carried us.  Anyone who has gone through a major trauma in life and who knows Jesus can understand and probably say Amen to that.

And it has been your prayers that have kept us going.  Not that they are magical, but because you brought us faithfully to the throne of grace, for us to find mercy and healing and provision - God responded to those prayers.  I've been reflecting lately on what prayer is; what it does and how it does it.  I don't really have a lot of answers, because God maintains a certain level of mystery, but I know prayer works.  So I keep praying and trusting that His desire and plan will be done.

Renee has made incredible strides this past year.  As we've been in this new world of stroke recovery with aphasia (which I've discovered it's own animal), we've met people, mostly over the internet who have and are enduring similar things, but are farther down the road to recovery.  They have encouraged me that Renee appears to be making great progress; and coming from them it carries a lot of weight.  Even this morning is another example.  She wanted to know who was coming today to be with her.  Since she can't come up with sentences on her own yet (she can repeat and practice ones I show her), she usually just says a word.  With much learning and context, I can usually figure out what she's trying to say.  When Renee wants to ask a question about anything, she will say "Where?"  I know it sounds weird, but that's the world of aphasia and stroke recovery - "where" has become the catch all word for all interrogatives.  This morning however instead of saying "where" and me trying to figure out what the question is that she is actually asking; she said "who".  For a second I just stood and stared; then I realized that she was actually asking "who?".  Who was coming today?  I know it's just one little word, but that little word now has the capacity to be built upon and dramatically increase her communication and our understanding!  Thank you God!

I've tried to detail and let you know how Renee has progressed this year so that you could rejoice with us.  It has been awesome knowing that there have been so many people cheering Renee on; who have rejoiced in her victories and have wept in our sorrow.  As God has never left us alone, He has often made His presence known to us through people - through you.  Many of you were and some still are people we've never met - yet you have become family to us.  You have loved us.  You have personified what Jesus said in Matthew 25...


35 For I was hungry and you gave me something to eat, I was thirsty and you gave me something to drink, I was a stranger and you invited me in, 36 I needed clothes and you clothed me, I was sick and you looked after me, I was in prison and you came to visit me.’

I grew up poor, but I have never known such need as this past year: emotional, spiritual, physical.  And Jesus used many of you to meet many of those needs.  You have provided meals when there was no way possible I could prepare a meal, you bought our growing kids clothes when there was no way I could go shopping for them, you have provided time so that I could go to work and have peace of mind knowing that someone was home with Renee and the kids.  You send cards and gift cards, and Christmas presents.  People opened their homes so we had a place to stay other than the hospital.  You visited Renee, even making a 3 hour drive to the hospital or flying across the country to do so.  And the list goes on and on and on...

I've said this before, but the things I've seen this past year are things you read about or see on a talk show; yet it has happened to us.  In the midst of the worst, we have seen the best.  Yet, as yesterday reminded us, we still need you.

Please continue to pray for us.  For no more seizures, for no more strokes or clots or anything damaging to Renee's already fragile brain.  That she is able to continue therapy.  That "who" turns into "who's coming today?" and her ability to speak is restored.  That our daily needs continue to be met.  That there is someone to be with Renee and the kids for every spot we need filled.  That her right side continues to improve with both ability, agility and sensation.  That Renee's cognitive awareness and mental processing increases.  For no more headaches (she has one today) or worrying symptoms.  That our kids continue to be great kids and do well in school and life.  That I am able to bear the burdens of dad, mom and caregiver.  That we make Jesus proud and are an example of a life well lived for Him.  That Renee is completely healed and restored.  And so many other things that come up.

There's one more thing I ask that you do - rejoice with us!  Renee is alive; my beautiful, wonderful wife, the mother of my 5 awesome kids is alive - and that is worth celebrating.

The road continues to be hard and long and dark, but I'm confident that better days are ahead and there will more many more opportunities to celebrate.  Thank you again from the bottom of this exceedingly grateful husband's heart.


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On February 26th at 2:25am Les was awakened by Renee restlessly moving.  At first he thought she was just moving closer to get warm.  He turned the lamp on to find her eyes open, but unresponsive.  He shook her, calling out her name, but she just would not wake up.  He noticed that as she was trying to grab a hold of me, she could not use her right arm.  

Doctors discovered Renee had suffered a severe stroke caused by a spontaneous carotid dissection. The inner lining of her artery had torn, causing the blood flow to slow and form a clot.  Parts of the clot broke off causing the massive stroke which has left her unable to speak or move her right side.

 Renee is only 38 years old and has 5 kids: Ivan aged 14, Maris 12, Anaya 6, Haven 4 and Aviah 20 months.  Les and Renee live with their family in Newark Valley, NY.

You can follow Les & Renee's journey on their Caring Bridge journal.  


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Jesus gave us a litany of last words as a Sufferer; we refer to them as the Seven Last Words of christ. The deathbed words of the Suffering Servant provide a framework for the stories o lament we share here this Holy Week.

I count it a high privilege to know -- at least in small part -- the mourning stories of the dear ones who will share here for seven days.  Their lives walk the path between celebration, yes, but also suffering -- illness, relational disillusionment, anxiety, joblessness, death of loved ones, death of dearly-held dreams.  Their stories have helped form me in my understanding of suffering and I believe they could also encourage you too.  

Wednesday, April 01, 2015

Retrieve Lament: Chris Pousseur (Woman, behold your son.)

"Once, ritual lament would have been chanted; women would have been paid to beat their breasts and howl for you all night, when all is silent.  
Where can we find such customs now? So many have long since disappeared or been disowned.  
That’s what you had to come for: to retrieve the lament that we omitted." 

             -- Ranier Maria Rilke, from Requiem For A Friend

Each year during Holy Week I ask friends to share a "mourning story" from their own life as a way to help us see Christ in the midst of suffering. Each story reflects on one phrase of Jesus' dying words. I love the Pousseur family and am forever grateful for the years we were able to walk and work together. From a distance now we've grieved and celebrated with them. We pray for beautiful, redeeming fruit to grow out of the ground of their suffering. Jesus' death-bed attention toward his mother and dear friend shows us again his tender heart. In the middle of Mary's greatest grief, he provided for her future needs as a good son and divine Redeemer of broken hearts.


At first we suffered.

There is much grief when losing a child. When you never had the chance to know your baby before they are gone, it leaves a particular kind of hole. It’s not the anguish of a life lost, it’s the anguish of lost potential. There are infinite names, infinite smiles, rather less infinite noses and eyes and lips, that could all have belonged to the one you lost. When we lost our son Max at seventeen weeks pre-term, it was this kind of loss. We held his little broken body in our hands and saw everything that he ever would have, could have been. We celebrated birthdays and kissed skinned knees and watched him grow and die in the blink of an eye. Our son.

In this suffering, though, there was hope. There was the belief that someday we would see him again. Heaven is never so far away. And in the meantime, his death would mean something. It would shape us and our faith, and open up others to deal with their own pain of loss and miscarriage. There was hope that God would get much glory, and true to his nature he did.

Then, we suffered without hope.

Before losing Max we had received an offer to serve with a missions organization in the great land of Japan. God had been slowly leading us there over the last seven years, and we were excited to have the opportunity. Things changed, however, when they realized that we had gotten tattoos to commemorate our Son. The tattoos were too much, and the offer to serve was revoked. Loss upon loss laid us low. We could find no hope in this, nor were we even able to seek it out. Seven years of slow struggle and our dreams were gone in a blink. Any “plans for a hope and a future” were irretrievable.

But we serve a bigger God now.

Jesus answered them, “Destroy this temple, and I will raise it again in three days.” When Max died, we suffered for something. Our suffering was redemption because we did it with our hope in Christ. God redeemed the very act of suffering not by negating it, but by bringing meaning and purpose to it, making it more whole than it was, more complete and holy. When we lost our plans for a future missionary life, I didn't have the faith to believe there was purpose or meaning. In this way the pain and anguish from this loss quickly overtook my pain for our son. It became the less bearable of the two, and the one I avoided.

Soon after, a new baby was due to arrive. Jemma Faith, healthy and whole: a strong root shooting anew. Later, a new opportunity for missions arose: a new work where the old had failed.

Thinking back, what I regret most from those days are the moments, weeks, hours I spent grieving with no hope, never thinking that our God is the god of resurrection. I wonder what I failed to see by not seeking Christ in my tears.


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Chris Pousseur is a husband, father, writer, creative junkie, and self-professed geek, preparing for a life-long adventure overseas with his beautiful wife and two lovely girls while seeking Christ in the here-and-now. 
Follow their journey at www.totallyheartjapan.com



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Jesus gave us a litany of last words as a Sufferer; we refer to them as the Seven Last Words of christ. The deathbed words of the Suffering Servant provide a framework for the stories of lament we share here this Holy Week.

I count it a high privilege to know -- at least in small part -- the mourning stories of the dear ones who will share here for seven days.  Their lives walk the path between celebration, yes, but also suffering -- illness, relational disillusionment, anxiety, joblessness, death of loved ones, death of dearly-held dreams.  Their stories have helped form me in my understanding of suffering and I believe they could also encourage you too.  


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